Cystinosis and Me: Speak Up, Speak Out!

Since July 2023, Unscripted has partnered with Believe, Ltd at Speak Up, Speak Out: Cystinosis and Me as part of the Cystinosis Research Network Family Conference each summer.

We improvise with youth ages 13-22 living with Cystinosis, in order to help grow their confidence, feel more comfortable performing, and have a joyful, creative, good time!

Participants used the creative connections built in improv to lead right into developing their own spoken word poetry.

watch highlights from SUSO 2025 here